“For I know the plans I have for you,” declares the Lord. “Plans to prosper you and not to harm you; plans to give you hope and a future.” ~ Jeremiah 29:11
I haven’t written in quite a while, but I wanted to check in and for anyone who checks-up on this blog: I’m Still Doing Great. I finished 2012 by completing my second Chicago Marathon. 2013 started with my wedding; a beautiful, small ceremony in Costa Rica on the beach. Our plans in 2014 are to finally house-hunt (we’ve been apartment dwellers in the city) and then maybe a baby… but that is a WHOLE other blog post…
Anyway, June 2013 marked three years since I received my diagnosis. I haven’t had any relapses and I continue to pray that it will stay that way. I continue to stick to a clean diet and exercise (alternating running and yoga) six days a week. My MRIs have been hit or miss; it seems like every other one there is a change.
- June 2010 to Dec. 2010 – No change
- Dec. 2010 – July 2011 – 2 new lesions
- July 2011 to Dec. 2011 – No change
- Dec. 2011 to May 2012 – No change
- May 2012 to May 2013 – 4 new lesions
It’s frustrating when the MRI shows new lesions. This last appointment was especially hard for me. I received “the talk” from my neurologist about the importance of interferons and their proven ability to slow disease progression. She’s not mean about it, but she does throw in there, “you want to start these before more damage is done and something happens to you that is irreversible.”
Needless to say, I left that appointment crying again; and as hard as I try not to, second guessing my decision to stay interferon-free. But I can never bring myself to give-in. The stats and studies just don’t compel me enough; and I always wonder if she would consider my results (clinical and physical) decent if I were taking an interferon. No physical disease progression, no relapses and six new lesions in three years… would this be considered successful treatment so far? Would she say, “good thing you’re taking A/B/C.”
Since I showed new lesions this time, she wants to follow-up in six months. My next appointment and MRI will be toward the end of November. I’ve been trying to identify anything that I was (or wasn’t) doing from July 2011 to May 2012 so I can replicate that period of “no disease activity,” but I haven’t come up with anything yet.
So until then… I will stay my course. I’ll stay true to good eating, good exercise and a great God.
My simple prayer: Dear Jesus, Thank you for everything. Please be with me and keep me healthy and strong as I continue in this life. Amen.